Depression and Balancing Life

A person might experience depression at any time during the journey with Parkinson's Disease, even before diagnosis.

Depression in PD is due to chemical imbalances in the brain. I have had Young Onset Parkinson’s Disease since 2011. Maybe my symptoms of depression were not diagnosed earlier. The symptoms of depression might come and go and are commonly overlooked and underrated. We need to be aware of the symptoms so that when we experience them they can be treated effectively. I had irritability, emotional disturbances and mood swings.

Nobody told me that after DBS there will be mood changes, behavioural changes, emotional disturbances.

No one around me understood me. One fine day I lost interest in everything which I previously used to enjoy; art, going out with my friends even. I did not want to speak to anybody. I couldn't speak to anybody. I felt helpless and lonely. I didn't realise this is depression. Nobody around me noticed too, even though I’m surrounded by doctors. One fine day I did not want to live. I started talking irreverently. I went into delusions. Then, I sought medical help.

My brother and parents brought me to Bangalore for treatment as I needed constant monitoring. I couldn't remember what happened for four days of my life. It's a blur. That was scary. I’m still under medical care. The non-motor symptoms of Parkinson's are indeed the worst to deal with. Stress increases the symptoms.  We have to be screened by a specialist every year.

Mood changes to be discussed with a health care provider.

Sometimes not giving up is easier said than done, especially when you feel alone and abandoned. Don’t give up. You may feel your friends and family have abandoned you, but in reality, they do not understand your journey. But we have to move on and make new friends with PD who understand us better.

Parkinson's Disease causes grief but we can live life to the fullest despite what we feel we are robbed of. It is not a death sentence and we can live joyfully by adopting a few lifestyle changes. Life is about balance. So be aware of the symptoms, seek professional help immediately and you can live the life you want. 

Shanthipriya Siva

Shanthipriya Siva is a consultant ophthalmologist, a self taught artist, the founder of SAAR Foundation and a YOPD warrior for 9.5 years. Her mission in life is not to just survive, but to thrive and to do so with some compassion humor and style. Battling PD she realized a lot of challenges faced by people in India so she started the SAAR Foundation with the tag line "shake off and move on" to make a difference in the life of a person with Parkinson's. Just like the metaphor when the caterpillar thought it was the end of the world she turned into a butterfly.

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From Four-Eyes to Eight

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Three Days Before DBS